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What is the prognosis for mac and bronchiectasis?

MAC & Bronchiectasis | Last Active: Apr 28 9:20am | Replies (26)

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@desertdwellerjh

Sue, first, we are all different, of course and genes play a big role. I am now 80. I was diagnosed with MAC and bronchiectasis in 2012 after questioning my mother’s pulmonologist about the possibility since my mom was diagnosed in her early 70’s. My mother lived until she was 89. She never received the now accepted treatment but rather with the fluoroquinolones and then azithromycin, I believe. I received the vig 3 treatment over 18 months and my MAC went into remission. I am quite vulnerable to lung issues so have a harder time w eg chest colds and covid knocked me back last summer. This past Fall I participated in an 18-session pulmonary rehab clinic that was outstanding. I learned how to breathe better. I carry a pulseoximeter when i go walking about 4 times a week and manage 4 miles at about 22 minutes per mile. Being active and exercising, I believe helps a lot. I just wanted to give you encouragement to be compliant with your pulmonologist’s instructions during treatment. - Jennifer

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Replies to "Sue, first, we are all different, of course and genes play a big role. I am..."

Your story is inspiring! You were diagnosed 13 years ago, and this is the first time you are doing the big 3? Have you just been doing airway clearance techniques and exercise up until then? It sounds like you are very diligent about being active. I admire that. I'm worried I won't be able to keep up the exercise routine I started. I'm 30 years younger than you, and I'm worried that I already have this issue at such a young age, and what that will do to my longevity