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I produce a sample every month., not once have they said it couldn't be accepted when I send it in. I have a need to constantly clear, all day long, what is sitting at the back of my throat. So, the "good and the negative of overproducing or underproducing. Go figure!
Also, "why he might have been vague". Hard to understand why we do not get what I would consider full communication from the doctors to help understand all and to help educate us. I have said to myself, they weren't trained to be 'teachers' and we haven't been medically trained to help us to know what to ask etc. nor are we trained in the skills to effectively gather client/doctor feedback such as a sales person is trained to do in asking probing questions to elicit valuable insights for the client/doctor to understand our needs for specific communication from them with answers and as well build a really good rapport. Then there is the time factor that the doctor has for each patient which limits our time with them.
Looking forward to hearing from others also.
Barbara
Replies to "I produce a sample every month., not once have they said it couldn't be accepted when..."
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@blm1007blm1007, My last CT was in December 2023, previous one in October 2021. Dec 23 showed that the biggest module I had in 2021 was no longer there. I have met every 6 months with my pulmologist after that. Last time was this past week. I rarely produce sputum, even after using the Aerobika instead of the Acapella. (I do prefer the Acapella, I think I will go back to it). My PFT is checked at each visit. It is in the normal range for my age. I rarely cough. I exercise daily, do my airway clearance (1 hour and a half morning and evening). I eat very well. My doctor says I am doing well, no flare up, no exacerbation. My grandkids visited on several occasions, while incubating something or being overtly sick: my husband got sick, I did not. My doctor says there is no reason to do a CT scan at this point. He emphasizes that CTS are not benign.
He told me last week that if I have an exacerbation or flare up, he will have me nebulize NAC. I have never heard of that. I was a bit surprised. But hopefully I won't have a flare-up or an exacerbation. I am working hard to avoid that.
Sometimes I do wonder if indeed there is any change in my lungs. I have been using the Acapella for over a year, the first 6 months I was able to cough up some sputum and a few plugs. Did it clear it all? Or are all those bacteria peacefully colonizing my lungs before triggering an exacerbation? I don't know. But since I cannot tolerate antibiotics, I have to focus on airway clearance and exercise. Nothing else I can do.
Best wishes of great health to all of us!