My husband has been on Leqembi for 10 months and we are happy with the results. He has had none of the side effects, and his memory has not gotten any worse, in fact, if anything is a bit better. The negatives are not with the drug itself, but it’s with the process and procedure.
Transportation takes an hour.
After my husband is seated and set up for the infusion , he has an hour wait time before the drug arrives. They will not mix it before he is there, as it is expensive and custom mixed for his weight.
The infusion takes a full hour. The total process takes four hours out of the day. The room and the chair is comfortable, there is a TV and a very friendly staff. They even offer snacks and water.
We caught the flu from the Mayo Clinic in December, and three weeks ago, we got Covid. We wear masks except for when we are in the infusion room. We could not have caught these things elsewhere because there was no other place we went where we were with other people either week. The elevators are the worst place for catching diseases. This last time, I would not even go in with him, but stayed in the car. Otherwise, please take precautions if especially if you have a compromised immune system. (The Mayo Clinic is full of a lot of sick people.🤪)
You cannot travel further than 100 miles away, and you have to plan every activity around the infusion.
All in all, it is well worth it because I have not seen the deterioration that other people have seen.
We were advised for my husband to take the four hour driving test to see if he could still drive, and after months of waiting for the appointment, he was certified to drive last Monday. Our life is getting a bit easier. The drug works.