Tymlos side effects

hi tkdesign, Tymlos doesn't cause gerd or stomach pain. Hypercalcemia can cause nausea. Tymlos raises your serum calcium for about four hours. Be well hydrated before your injection. Have something salty and/or something with caffeine to avoid any headache from low blood pressure.
Which leads to your other question about calcium. I'm not on your medication, but the similar Forteo. I've never had nausea but I'm stingy with calcium supplementation.
I take citrical usually 250mg in the morning. After two years on Forteo my calcium was down 9,1 from 9.8 so I added 250mg at night. It easy to figure out how much we absorb from food. But we try to add it all up. Usually 1200mg of Calcium in total is recommended. The endocrine society recommends 1000 to 1200 daily total including dietary calcium Your doctor is recommending supplement because your serum labs are low?
Tymlos is such a good medication. I hope it works well for you.

Hi
I had nausea for about 12 hours after my injection, then stomach pain and headache for 24 hrs. My bp wasn't super low. I do supplement with 1500mg daily in addition to diet when my dr said i may not be absorbing enough. I had been using 1000mg a day. I don't understand why to take more calcium if the drug causes you to have high calcium levels.
If I get nausea from the drug for such a long time, doesn't seem good.
Thanks for sharing.

tkdesign just to add to gently's point about GERD, I have very active gerd, for which I take two different meds and they don't always work plus I have to watch my diet, but I've had no reflux or gerd reactions to Tymlos. If Tymlos caused it, I'd have had it. So I think that's one thing you needn't worry about. FWIW.

@tkdesign, I have many digestive issues. I was only able to tolerate a half dose of Tymlos. It never made my GERD worse, but at the higher dose 50 mcg (5 clicks) I had nausea, dizziness and orthostatic hypotension. I am now on Forteo, with no digestive issues. For the first 4 months, I had no real issues with Forteo. Now in my 5th month, I have a lot of joint pain, some fatigue, some brain fog, and swollen veins in my legs. I also got belly fat originally from the half dose of Tymlos, but was willing to put up with that for stronger bones.

I'm starting with 2 clicks, had lot of nausea and dizziness with just this dose, but also I am very small, low weight. I see alot about getting 5-6 mo into these meds and then joint pain or muscle pain showing up. I wonder why that is. But those symptoms could be high blood calcium...the fatigue, brain fog. Have you had levels checked?

I have a blood test coming up in one and half weeks. I already have had too much calcium in my urine. I skipped one night of Forteo recently and felt so much better the next day! I actually had energy and was able to get a lot done. Maybe I should cut out my 180 mg of Algaecal calcium. The last PA I saw said that that's nothing, keep doing what you're doing. I have all of the symptoms of too much calcium, brain fog, fatigue, muscle weakness, frequent and urgent urination. It's the pain that I really can't tolerate. Thanks for your postings @tkdesign. I used to be very small, low weight like you, but I have gained 12 pounds on these medications.

I have never had any stomach issues and started tylmos with little concern for digestive discomfort. I read that TYmlos does not cause GERD but the side effects listed as common, do include stomach pain. Unfortantely I began to expereince upper stomach pain six months after starting tymlos; this was accompanied with excessive burping and feeling that I was 'full' after eating just a few bites. Food would sit in my upper stomach. I had no intestinal gas. I spoke to the tymlos pharmacist who concurred that they receive quite a few comments about upper staomch pain but they did not have any suggestions to help.
Allopathic doctors could not help me - I did not have an ulcer and did not have GERD.
After much research, and seeking naturapathic help, I learned that there are parathyroid receptors all throughout body and indeed the pancreatic islets are full of PTH receptors. Pancreatic enzymes are essential to digest foods. My symptoms echoed pancreatic insufficinecy. Voila.... I started taking pancreatic enzymes with meals and all my sympotoms subsided. It was a simple inexpensive solution but took a long time to figure out. We are each different and will have different side effects. The key is to figure out how to manage them. Sending postive energy and healing light to bring you the best of health. Stay positve and engaged. We can help each other along the way....

dmshope, well done. Have you determined if Tymlos is indirectly causing pancreatitis or if it is simply lowering absorption. I would want to know if the pancreas remains inflamed even with the supplementation of the enzymes. Thanks for your research, your post, the positive energy and a special cheer to your naturopath.

Now I bet almost no doctors know that. It would seem people with GI problems might need to know.

Thank you for your encourgement. It was a long complex job to try to figure this out. The thought is that, for me , the tymlos was building up in the body. I do not process toxins fast or well - hormones, toxins and medications must be processed ( detoxed) in the liver in order to be eliminated from the body. Normally I do not have a probelm , as I eat cleanly, organic, no caffiene, no alcohol, no drugs ( not even tylenol)., no frageances no chemicals.etc. However, tymlos is a hormone and must be processed. Since I am a slow processor, the hormone began to sit in my system and get attracted to sites it could attach to - the pancreatic islets ( loaded with PTH receptors) were my vulnerability and became 'clogged' so the enzymes could not get to the digestive track. I believe I have always had a vulnerabiity there so I dont know if the pancreass continued to be inflammed even while I as on enzymes - but I am now off tymlos and have returned to 'normal' My ayurvedic /naturpathic physician veiws digestion not so much as a stomach issue as it is a liver/gall bladder/ pancreas issue. This is a different prespective than most GI people who seem to assess digestion as always a stomach issue or acid issue. I did not have a stomach problem or an acid problem.
I was very lucky to arrive a solution ( supplement with enzymes and liver support) to manage the pain and digestive issues. It gives us hope that we can learn to handle the side effect that are not severe and do what we need to regain health.