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Great question. I have been curious about this as well since I’m in the group that hasn’t been able to produce a sample. I asked my ID Dr what the follow up/monitoring will be once I’m off the meds (most likely not until Feb 2026) but he said we’ll discuss it later. Results from my bronch weren’t back during my last visit which is why he might have been vague. It would be helpful if this was also part of the standard of care to have a framework and know what to expect or advocate for. I did also read the article about C scan risks so have to balance out the risk vs need for the information. That being said my first two scans were done at the hospital outpatient facility. The second at a stand alone as this is all insurance would cover. The reports from the stand alone are much less detailed so I am concerned about information not being conveyed.
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I produce a sample every month., not once have they said it couldn't be accepted when I send it in. I have a need to constantly clear, all day long, what is sitting at the back of my throat. So, the "good and the negative of overproducing or underproducing. Go figure!
Also, "why he might have been vague". Hard to understand why we do not get what I would consider full communication from the doctors to help understand all and to help educate us. I have said to myself, they weren't trained to be 'teachers' and we haven't been medically trained to help us to know what to ask etc. nor are we trained in the skills to effectively gather client/doctor feedback such as a sales person is trained to do in asking probing questions to elicit valuable insights for the client/doctor to understand our needs for specific communication from them with answers and as well build a really good rapport. Then there is the time factor that the doctor has for each patient which limits our time with them.
Looking forward to hearing from others also.
Barbara