Connect
← Return to Been diagnosed with PSP. I live in Canada. No meds here to help fight
Discussion
Been diagnosed with PSP. I live in Canada. No meds here to help fight
Brain & Nervous System | Last Active: Apr 17 10:59pm | Replies (5)Comment receiving replies
@pspalsy
I’m sorry to hear about your PSP. It must be difficult to deal with.
What testing and treatments have you had so far?
1. https://www.mayoclinic.org/diseases-conditions/progressive-supranuclear-palsy/symptoms-causes/syc-20355659
2. https://www.ninds.nih.gov/health-information/disorders/progressive-supranuclear-palsy-psp
3. https://www.hopkinsmedicine.org/health/conditions-and-diseases/progressive-supranuclear-palsy
4. https://my.clevelandclinic.org/health/diseases/6096-progressive-supranuclear-palsy
5. https://www.nhs.uk/conditions/progressive-supranuclear-palsy-psp/
6. https://www.americanbrainfoundation.org/diseases/progressive-supranuclear-palsy/
7. https://www.americanbrainfoundation.org/diseases/progressive-supranuclear-palsy/
8. https://rarediseases.info.nih.gov/diseases/7471/progressive-supranuclear-palsy/
Replies to "@pspalsy I’m sorry to hear about your PSP. It must be difficult to deal with. What..."
@dlydailyhope
When you have had all the tests that are available and are given a diagnosis, then you need to do is live your life doing things you love.
There is no cure.
While I can still take care of myself, I am teaching my son how to cook his favorite meals. I’m giving my costume jewelry to my granddaughters etc.
Connect
There are no treatments to help slow PSP down. I've had an MRI done on the cerebellum brain area and upper spine, and it showed a hummingbird outline in the brain, which is a sure sign of PSP.