My story is long and complicated! Symptoms for a couple years was diarrhea and gerd. Dr was trying to figure it out. Then one day 05/23/2021 I had a vomiting episode that lasted almost 24 hours every hour I got sick. I went to the hospital and thought I had a kidney stone nothing was found . Two days later while vomiting again I blew a 3 inch hole in my esophagus I needed emergency surgery to repair it surgeon saw tumors on my liver. Biopsy confirmed nets. Pet scan showed tumor in the head of the pancreas atrophied tail 3 lymph nodes and up to 30 in the liver on both sides. Gastrin was 2,000 went on lanreotide Gastrin went down to 850 for a couple months then back up. I am still on lanreotide as it controls symptoms I started with Chemo Captem 5 months It did not work then finally had SIRT radiation with complications. However it worked I am currently stable and Gastrin is about 200. I too take extreme amounts of ppi and also take carafate 3 times a day I had major stomach issues also had feed tube 2 occasions due to the perforated esophagus and radiation ulcers. Feel pretty good now still have trouble swallowing and I can’t eat certain foods. Sorry I rambled I hope that helps that is part of my story. Sorry you have to deal with that. Where do you go and do you have a net specialist? Perhaps your tumors are tiny and if the don’t have receptors they won’t light up on the Petscan