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DiscussionYour tips on how to live with Lymphocytic Colitis/Collagenous Colitis
Digestive Health | Last Active: Dec 23, 2023 | Replies (116)Comment receiving replies
Replies to "Hello, I am new to this group. As a teen, I was told I had a..."
This is my life. Had a nissen fundoplication and hiatal hernia repair in December got c-diff from the hospital. Had 3 good weeks. Non stop diarrhea for over 7 months. In the meantime was diagnosed with Lupus (had a blood clot in 2016 was trying to get off blood thinners because Arthritis was so bad and I couldn’t take anything due to being on thinners). Finally had colonoscopy revealed lymphocytic colitis. I feel like I should have just kept eating tums my whole life and took my chances getting cancer instead of having the nissen. I’m sure having lupus and not being diagnosed till 47 didn’t help but that surgery feels like the start of all things bad in my life. I am forever changed and not for the better. Getting a hysterectomy in September. Who knows if that is connected to all the madness. Thank you for sharing your story.
Hello @gingerm, have you tried taking a probiotic? My mom.. just turned 90 was having the diarrhea problem for months and her doctor did all sorts of test and came up with no reason (she did have her gallbladder out years ago. So could have been something she was eating. I tried to get her to do a food diary to figure out if certain foods triggered it, but she would not do it.) I bought her Align probiotics and she was back to normal within a few days after taking them. I have been taking them myself since about 2008 after my husband's cousin suggested them. I had tried cheaper ones, but they did nothing for me. My son tried the Align and they gave him bad stomach cramps. Try and see what works seems to be the thing to do. Just adding yogurt (with live cultures) may be enough to help. My brain has gone blank on other food probiotics. Adding a probiotic may actually help you eliminate other meds you are taking. Diarrhea can be a side effect of many medications. You might check side effects of the ones you are taking and talk to your doctor about alternatives. I hope you find something that helps you.
Zaroga