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Anyone had IVIG Infusions for CIDP ceased after a number of years?

Autoimmune Diseases | Last Active: Apr 17 2:57pm | Replies (8)
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@suetex

My thoughts about stopping IvIg (for Sjogren's) are because my veins are starting to blow-they won't hold the pressure of the drip. I suspect my age (78) has something to do with it. It makes sense to get a port if you are having chemo with a finite treatment time, but mine will be open ended. Eventually I will get an infection in the port and that will be a mess. Better I face it now. Afterall, it is my body attacking itself and I should find a way through this. I've had a lifetime of doing that.

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artemis1886 | @artemis1886 | Apr 16 9:04pm

I had mrsa bacterial spinal meningitis in 2002 and lost all my veins. When I have procedures done they either go through my neck or I have a PICC line put in. I have had a Picc line for three months after the bacterial spinal meningitis and then oral antibiotics for another three months. I prefer the Picc line verses the one through my neck. When I get my IVIG I get a Picc line to go with it.

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