NET in the jejunum spread to liver

@tgsenn70: I am also NET small intestine primary with liver metastases, diagnosed 10/2022 with 28 day injections of Lanreotide.
I have learned that MRIs with Eovist contrast reveals best location and size of liver tumors. This is important to stay viligant of tumors. You may choose to discuss this issue with your Oncologist.
I will suggest you ask for a 2nd Opinion from a NET Specialist Oncologist at a cancer center. It is very important to receive treatment options from NET specialists (both Oncologists and Surgeons)! You need to learn all you can about NET and refer to your “grade, stage, Ki67, differentiated specifics” to understand about your NET cancer. NET tumor cancer is unique to every individual.
Mayo Connect is a good resource for peer experiences, treatment options, and answers to your many questions. As you educate yourself you will deal better with this problem. This is your new reality, but there are many treatment options and new ones in clinical trial that give us all hope. Best… Bette

I am also going through the same thing but the tumors are through out (inside) my liver. I been taking the Lanreotide injection every 28 days now for 4yrs (02-10-2021) with CT scans every six months. We're at a watch and wait hope and pray 🙏

Thank you for sharing. 🙏🏻

Did your doctor tell you surgery wasn’t an option?

I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on Ocreotide injections close to 2 years. No new tumors generated during that time but some existing tumors continued to grow.. Started Lutathera treatments and after 2 treatments no new tumors generated during, no growth, and a few started to reduce in size.. My last treatment is in May.. I was told surgery was not an option..hoping the best on your journey…

Thank you for sharing. That sounds like wonderful news for you. If you don’t mind sharing, is your current treatment an injection?

The treatments are induced by IV, it takes about 5 hours total. Starts with an amino acid drip, to protect the kidneys, and nausea meds.. this is for about 30 minutes then they administer the [radiation] that takes about 30-40 minutes, then it’s reclining and watching TV while they keep the amino acid drip going for about 3 hours , after this I have my Ocreotide injections. Overall with the injections after it’s a 7 hour day.. Hope this helps….

I do appreciate you sharing. It has been very helpful to me. I would be interested in why they said surgery was not an option for you. I have not been able to find any guidelines like when surgery is appropriate and helpful. Best to you with your treatments.

Hi, and thank you for your kind words. My husband is the patient. They told us that basically surgery would be a last resort because of the location of where his tumor began, which is a portion of his small intestine. Wishing you the best also on your journey.

Thank you! That is very helpful. Wishing you the best as you continue your journey.

@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera infusions from June-Dec 2024. I have small intestine primary with liver metastases & when tumors got larger I choose PRRT over major surgery. MRIs in Jan & April 2025 revealed tumors continued to shrink in size. My primary tumor was 7cm in Oct 2022 and now less than 1cm!
This is a great protocol with little to no side effects. I think it is a “win-win” decision! Thank goodness for Medicare! I am extremely grateful!