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@jab29

Thank you for your reply. I had ACDF surgery at C5 C6 two years ago due to a nerve root compression on the left side shortly after surgery within six weeks suffered, spinal cord compression at the surgical site discovery and cause of this injury is unknown. I suspect injury during surgery as I complained often about my recovery. I’ve been to two neurosurgeons for a second opinions as well as two neurologist, including a muscular neurologist, all current MRIs and CT scans keep showing no new compression however, I have been experiencing newer symptoms within the last 4 to 6 . I’ve been to two additional neurosurgeons and each say that I’m not a surgical candidate the neuromuscular doctor suspects myelopathy pain syndrome due to spinal cord injury from two years ago. I’m trying to get another EMG study for upper extremities this week and seen a third neurosurgeon for his opinion. I feel so defeated . Symptoms currently are burning sensation in back of neck head and scalp arms and legs . Muscle twitches and aching Feel weak and often feel like my body is on a constant fight flight. And experiencing vision changes too. Rochester Mayo denied my attempt to consult they just won’t take on my case even though I’m covered with insurance and I’m trying to get in to clevand clinic next . I m exhausted and feel like these last two years have been passed around from one doc to the next or try this medication . Just not getting any clear answers

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Replies to "Thank you for your reply. I had ACDF surgery at C5 C6 two years ago due..."

@jab29
Did you ever have a MRI of your brain?

Does your cervical MRI show any spinal cord/thecal sac flattening or compression? No disc bulges or herniations? No bone spurs/osteophytes? No buckling or thickening of ligaments?

Have you read all of your medical records of imaging and test results in detail? Did your cervical MRI before ACDF surgery show any spinal cord flattening/compression or signal changes or did this show up only after surgery? How long after surgery did you get an updated cervical MRI to see what was causing your new symptoms?

@jab29
Neurologists can do the EMG/nerve conduction studies of upper and lower limbs but this just detects nerve signal from spinal nerve roots to limbs (radiculopathy if spinal nerve roots pinched) and nerve health within limbs/peripheral muscles. EMGs cannot really measure what is going on in spinal cord if injured (like from myelopathy compression injury).

You may want your neurologist to do small fiber neuropathy skin punch biopsy using samples from thigh/ankle to see if that is causing your burning sensations.

Have you ever had your thoracic or lumbar spine MRI done?