← Return to Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

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@aithnie

I was diagnosed with lymphocytic colitis 6 yrs ago and last year collagenous colitis was added, as well as diverticulosis so I understand your frustration. I found some relief through diet. I can eat in small amounts cane sugar, pure maple syrup, raw honey, and raw fruit. I cannot eat any gluten (wheat, rye, oat, corn, semolina, tapioca - that is in flour, bread, cake, biscuit, wheat pasta, couscous, beer, malt vinegar). No soy, soya, tofu, soy lecithin, Worcestshire sauce, or MSG. No dairy - milk, cream, butter, cheese, casein, or whey (can handle goat milk). No beans, peas, guar gum, peanuts or cashews. No chicken eggs, duck eggs are no problem for me but they are expensive and hard to come by. No potatoes, tomatoes, eggplant, bell peppers (hot peppers seem to be no problem for me). Raw vegetables e.g. salad which I miss. No high fructose corn syrup or aspartame. The only oils I can tolerate are coconut, olive, and walnut.

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Replies to "I was diagnosed with lymphocytic colitis 6 yrs ago and last year collagenous colitis was added,..."

Hello @aithnie and let me add my welcome to Connect. We are glad to have you join out online patient support group and thank you for your post about lymphocytic colitis, collagenous colitis and diverticulosis. It is just remarkable that you have found a way to help control your symptoms with diet. I have had three surgeries for a rare form of cancer in the upper digestive tract (NET/carcinoid) and also have diverticulitis so I understand how important diet can be in staying well and comfortable. From doing a little research, I see that this is a rare disorder. If you are comfortable doing so, please share with us how this diagnosis came about. Had you been having symptoms for a long time? We look forward to getting to know you as you share your story with us. Teresa