Thank you so much for the response. You have no idea how nice it is to speak to someone that “gets” what you are going through. I currently have a NETs specialist at Mayo Jacksonville following me, along with a hematology oncologist at Cleveland Clinic (closer to home) who does my Lanreotide injections. They are also setting me up with an endocrinologist.
I will be praying for you and all of us on this forum that the amount of tools in the toolbox keep growing.