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Taking prednisone before sleep.

Polymyalgia Rheumatica (PMR) | Last Active: Apr 16 7:39pm | Replies (8)

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@jeff97

It sounds like your dose of prednisone might be too low to control your symptoms. I know from previous posts that you're also taking Actemra, but maybe the Actemra hasn't taken full effect yet. I can't speak to the effectiveness of taking prednisone before bedtime.

Your description of vision problems is concerning. I have GCA that included vision problems, so I know how dangerous that can be. Have you checked with an ophthalmologist about your vision problems? Those symptoms sound like they could be GCA or cataracts.

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Replies to "It sounds like your dose of prednisone might be too low to control your symptoms. I..."

Thanks Jeff.

You're probably right and 8mg is not enough to see me through a 24 hour period. I suppose I'll have to increase it a little again and see if that helps.

I definitely think I felt better today at times by taking one dose last night but I do keep crashing intermittently which feels awful.

I started on Actemra last week and injected again yesterday. So way too soon to make a difference of course.

I've had the tests for GCA after my PMR diagnosis and been told I definitely don't have it. I've had early signs of cateracts for a while but not bad enough yet to do anything about it. Apparently, prednisone can cause cateracts according to what I've read so, I imagine it will likely make existing cateract problems worse. It's not only blurred vision at the moment. It's sort of dizzy, spaced-out vision that makes things swim about in front of me. I've no idea what that is!

Many thanks for your help.