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Gleason score 3+4 plus perineural invasion

Prostate Cancer | Last Active: 5 days ago | Replies (16)

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@happydappy

You speak with great authority here with definitive statements even making treatment recommendations. Are you a doctor? Is this in line with the guidelines of this forum?

Everything I can find in the research literature about PNI is mixed and I will wait to hear what my doctor says at follow up. I was hoping my post might elicit experiences from others who had similar pathology reports and what they did and what was recommended to them.

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Replies to "You speak with great authority here with definitive statements even making treatment recommendations. Are you a..."

I quoted doctors in what I have said to you. I have recommended things that are standards of care with prostate cancer. When I give advice I almost always include, ask your doctor, unless the recommendations are for slight differences like Orgovyx over the other ADT options.

I have attended Advance prostate cancer weekly meetings at Ancan.org for about 4 years. During the meetings, they recommend treatments to people that are most likely to be standard of care. I also attend biweekly meetings with another group and monthly meetings with UCSF’s group. All of these meetings discussed treatments for people that have a need for options because many of the times the doctors they are going to are not following guidelines and under treating people. When I recommend different treatments, I almost always say ask your doctor, since I am not a doctor.

People need to have exposure to different treatments that other people are having that actually work. That’s one of the reasons they come in here, To get other options For their treatments.

I also have had quite a bit of experience with prostate cancer. I’ve had surgery and both salvage and SBRT radiation. I’ve had four reoccurrences, and with all I’ve learned during the 15 years I’ve had prostate cancer I can pass on a lot of first hand experience.