← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

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Profile picture for csmirat @csmirat

I would love to join a support group for Raynaud's Syndrome. Please include me if you start one up. I have had raynauds for 30 years. And have been thru it all, its part of a bigger autoimmune disease called Crest syndrome. Thank God I have had wonderful rheumatologist over the years. I am on generic Viagra for many years, 3 times a day. I'm also on Losartan to all open up blood vessels in my hands and feet. My hands are worse. I get ulcers on my fingers mostly in winter a d if they get infected I have gotten osteomyelitis and almost had my fingers amputated. So I have alot of preventative measures that I have learned with experience. I also have a team of wonderful drs that respect my opinion and experience with this disease. I am also a nurse, and that helps. It's amazing how other people I have met get no pr poor information and help from their drs.

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Replies to "I would love to join a support group for Raynaud's Syndrome. Please include me if you..."

Have you been to Raynauds.org ?