← Return to Tidvak (tisotumab vedotin) therapy for Metastatic Cervical Cancer

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An update on my TIVDAK experience: I had my second scan during my treatment with TIVDAK. The drug is still working for me after 9 cycles. No more spread, some shrinkage, no new growths. I asked my oncologist “what’s next”? To which he replied: “we keep going with TIVDAK every three weeks, with a scan after every 3 cycles.” Yes, TIVDAK has side effects but I’m all in, ready to keep powering through the side effects because I continue to respond to the drug.

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Replies to "An update on my TIVDAK experience: I had my second scan during my treatment with TIVDAK...."

That’s great news! Glad you are responding so well! How are you feeling?

@margitdill This is such good news. Thank you for coming back and sharing this with us. How are you feeling? How long do the side effects last?

One of the big side effects of TIVDAK that concerns doctors is severe eye inflammation. I have to have my eye doctor check my eyes prior to each treatment. Thankfully, my eyes are fine. I follow the post-chemo eye drop protocol and after 10 treatments, no eye problems, one of the inconveniences of the TIVDAK infusion is that you have to keep ice packs on your eyes for 60 minutes during treatment. To ease this, I wear gloves because I have to hold the ice packs in place. Without gloves, the coldness begins to hurt your hands. Then I find something I can listen to for 60 minutes to make the time fly by. Usually this is a sermon, a Bible lesson, a guided meditation - something that is healing and inspiring. Since I started doing this, I don’t mind the icing part of the treatment at all.

I am trying to find out all I can about cervical cancer. My youngest daughter was recently diagnosed after having surgery to remove one of her ovaries which developed a cancerous mass.
I have already cut out processed foods and sugar drinks from her diet.
I just feel like I need to learn more, and do more to help her thru this.
Does anyone have recommendations ?
Thank you, in advance.
Amie Rudy

Hey … thank you. I feel like giving back even in a little way because these diagnoses are scary and it’s hard to know where to turn.