Hello @darj, welcome to Connect. I can only imagine how frightening and frustrating these symptoms must be. Other members on this site have repeatedly said that the best thing you can do is continue your quest for a diagnosis and to not give up.

I am inviting @upnorthnancy, @dolan, and @mollyb1968 who all have osteopenia and may be able to share whether or not they have had any feelings of their feet feeling of tight skin, or tight and achy legs that gives them trouble controlling them when they walk or stand.

@darj, you mentioned that you have had 3 nerve tests. When they conducted those tests, were they checking for peripheral neuropathy? If so, was that ruled out?