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taper decision - stay at 1MG or keep going lower

Polymyalgia Rheumatica (PMR) | Last Active: Apr 15 5:58pm | Replies (11)
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@dadcue

I had some back-up assistance from Actemra when I went from 3 mg to zero in a week. An endocrinologist said it was safe for me to go from 3 mg to zero without tapering as long as my cortisol level was good. Actemra was controlling my PMR symptoms.

A low cortisol level causes withdrawal symptoms which is easy to mistake for PMR. The best way for your cortisol level to rebound is to stop Prednisone.

Addendum: So long as your doctor says it is okay to stop prednisone.

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Replies to "I had some back-up assistance from Actemra when I went from 3 mg to zero in..."
jeff97 | @jeff97 | Apr 15 1:21pm

I'm uncomfortable with your last sentence: "The best way for your cortisol level to rebound is to stop Prednisone." Stopping prednisone can be fatal for some people on this forum if it is not done correctly. It should be done in coordination with a doctor, and only when the adrenals have had a chance to start working again.

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