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Hyperinflated Lungs?

MAC & Bronchiectasis | Last Active: Apr 29 7:51am | Replies (27)

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@nellacarsonevans551

I have COPD and sever asthma. About 8-10 years ago, if I remember the time, I also had hyperinflated lungs. For about 15 years I have been taking Albuterol, Budesonide, Brovana all on the nebulizer, Spiriva respimat. Nothing worked and I was on prednisone off and on for many years. That didn't help either. Things got really bad about 5 years ago and I was in the hospital with respiratory failure, O2 level was 84. For about a year I hadn't been able to walk 10 ft at a time. Finally got out of the hospital and was so very hyperinflated and that continued UNTIL FINALLY my pulmonary doc said why don't we try Dupixant. This is the truth, within 2 weeks I was in the basement helping my husband paint sealer on the walls!!!!!!! I hadn't even been able to go in the basement for 2 years because I couldn't breathe to come back up the steps. This saved my life! I still continue my neb meds and Spiriva and never had prednisone again, no really hard times breathing ever again ever. . Oh, and immediately after starting Dupixant the hyperinflation went away. Good luck to you! And my belief is a good pulmonary doc will make sure you get a chest or lung scan at least one time a year.

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Replies to "I have COPD and sever asthma. About 8-10 years ago, if I remember the time, I..."

@nellacarsonevans551
It’s great that the medication has had such a wonderful impact on your health!
It was only mildly hyper-inflated lungs on my inital x rays before I was diagnosed and was given information. Maybe due to infection and lots of mucus in my lung? I was still functioning but was very fatigued and had very real symptoms that were dismissed by my doctor.

We must be good advocates for ourselves. Thanks for sharing and all the best to you!

That is an amazing story. So pleased for you.

I believe lungs are hyperinflation. I know 40 years ago I had to have extra lead in my scuba gear to keep me down. Then after an xray about 15 years ago I was told it was OK, in actual fact athletes also had big lungs (although I am not an athlete)! I did some kind of trial around 2010 where they said I had some kind of eosinophilic inflammation. I had been on all sorts of inhalers for asthma, like you, which had made no difference...and so I was non compliant with them. I was finally diagnosed with Bx about 2015, and when I started airways clearance around 2019 I have had a huge volume of
mucus expelled through nebulising.

They still say that my Bx is mild and it couldn't account for the volume of mucus and still seem to think that it is related to asthma...despite the inhalers not affecting it@

So I am wondering about this Dupixent for me! There must be a huge amount of inflammation going on in my lungs. I have recently started using turmeric and also lignosis...yet to see much difference.