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taper decision - stay at 1MG or keep going lower

Polymyalgia Rheumatica (PMR) | Last Active: Apr 15 5:58pm | Replies (11)
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@pu911

I went from 1 1/2 mg/day to 0 in about 5 days. I've been at zero for almost two weeks. My shoulders were a little sore when I was taking 1 1/2 mg but it didn't get any worse when I completely stopped. The soreness started going away once I became more careful with my diet.

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Replies to "I went from 1 1/2 mg/day to 0 in about 5 days. I've been at zero..."
Mike | @dadcue | Apr 15 11:37am

I had some back-up assistance from Actemra when I went from 3 mg to zero in a week. An endocrinologist said it was safe for me to go from 3 mg to zero without tapering as long as my cortisol level was good. Actemra was controlling my PMR symptoms.

A low cortisol level causes withdrawal symptoms which is easy to mistake for PMR. The best way for your cortisol level to rebound is to stop Prednisone.

Addendum: So long as your doctor says it is okay to stop prednisone.

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