Looking for people who have high levels of B6 trigger neuropathy.

As far as my “search goes” for a “cure” for Peripheral Neuropathy is THERE IS NONE! Time and Patience is the Key. As far as I know “we” are waiting for our Nerves to “heal”. I survived Stage 4 Lung Cancer two and half years ago. I Hate this Neuropathy in my Hands and Feet … BUT I AM ALIVE!

Hi! These conversations lead me to new understandings and some solutions to B6 levels being too high.
I believe in supplements so switched to one discovered here that has NO B6., “B6T Smart”.
Learned also that original of problem may lie in misunderstanding of B6 as a water soluble vitamin. Summary of the article, best I can explain is this: it takes water to flush it out. If you have an event or naturally don’t drink enough water, it can’t be properly flushed due to dehydration. Some limited build up then takes place in muscles. Again, if not pushed out , this time via exercise, it winds up in nerve endings, doing the damage that results in neuropathy. My task so it doesn’t progress is to drink much more water and exercise. Neither can hurt you, and surely helps other body needs be met.

I have Idiopathic peripheral neuropathy and they found a high B6 level years ago on a test; however several years have passed and subsequent tests have not shown highB6 levels and no improvement. I do take a multivitamin I get from Desert Harvest that does not contain B6. But as I say, I think they were grasping at straws.

I've had sensory, motor, and autonomic neuropathies since 2011. I took a multivitamin with a high amount of B6 for several years. At the end of 2023, I began taking B complex, and beginning in early 2024, I had a significant, impactful flare-up that lasted throughout the year. I also started losing handfuls of hair. In October, I learned about B6 toxicity and asked to have my nutrients tested, and I was high in B6. I stopped taking the two supplements, and now I am moving back towards what I consider a typical plateau for my neuropathy symptoms; my hair loss isn't as severe, and B6 serum levels are going down slowly. It can take years for the B6 stored in nerves and muscles to move out of the body. And yes, exercise and lots of fluids help the process. Now I only take the individual vitamins and minerals that testing shows I am deficient in. Even a supplement with only 4mg of B6 is too much! We get more B6 than we need from our diet. But, there can be other reasons for elevated B6. I suggest asking for an intracellular nutrient test, as blood serum is not always enough. I will do this very soon because my blood serum B12 is still very high without supplementation, and it IS water soluble, unlike B6. https://www.spectracell.com/blog/posts/serum-vs-intracellular

Thank you for sharing all of this. Not that I wish the condition on anyone, but there is comfort is knowing from others that B6 toxicity exists, despite doctors raised eyebrow skepticism.
I will be checking out intracellular nutrient testing. Do you know the cost?

I don't know the cost. I haven't had the tests done yet.

Thanks, will check it out myself, as I doubt Medicare will pay.
I feel regular monitoring is needing, rather than wait for those symptoms that let me know it’s already too high,

I’m told damage that was done to my nerve cells during high B6, causing neuropathy, is not reversible. So if I manage to keep B6 levels low, that will only prevent it from getting worse.
Focus on being much more hydrated , getting more exercise.