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Looking for people who have high levels of B6 trigger neuropathy.
Neuropathy | Last Active: 10 hours ago | Replies (38)Comment receiving replies
I've been searching for the cause of peripheral neuropathy for a few years with symptoms getting worse. Two doctors tested and labeled it "idiopathic." Then a month ago a doctor suggested it could be Vitamin B6 Toxicity. He tested and my B6 (pyridoxal) is twice the normal upper range. The issue is, I was not taking mega-vitamins. I was just taking a daily multi-vitamin with 3mg of B6 which shouldn't accumulate to toxic levels. So I've stopped the vitamin and will retest in a month or two. Has anybody else had experience with B6 toxicity related to neuropathy? There is a bit of info on the web, but not much. I'm looking for others who have experienced this, tested, and then tried to detox.
Replies to "I've been searching for the cause of peripheral neuropathy for a few years with symptoms getting..."
Hello @andil, I combined your discussion with an existing discussion in neuropathy titled:
"Looking for people who have high levels of B6 trigger neuropathy"
- https://connect.mayoclinic.org/discussion/looking-for-people-who-have-high-levels-of-b6-trigger-neuropathy/
@margesil started this conversation wondering the same thing as yourself and @dhamil, @26sabrina and @mrterry are just a few members who shared their experience with B6 and neuropathy-like symptoms.
As far as my “search goes” for a “cure” for Peripheral Neuropathy is THERE IS NONE! Time and Patience is the Key. As far as I know “we” are waiting for our Nerves to “heal”. I survived Stage 4 Lung Cancer two and half years ago. I Hate this Neuropathy in my Hands and Feet … BUT I AM ALIVE!
I have Idiopathic peripheral neuropathy and they found a high B6 level years ago on a test; however several years have passed and subsequent tests have not shown highB6 levels and no improvement. I do take a multivitamin I get from Desert Harvest that does not contain B6. But as I say, I think they were grasping at straws.
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@andil
It may not be only from diet or supplements. You may need additional testing.
1. https://www.sciencealert.com/too-much-vitamin-b6-can-be-toxic-heres-what-you-need-to-know
2. https://www.merckmanuals.com/professional/nutritional-disorders/vitamin-deficiency-dependency-and-toxicity/vitamin-b6-toxicity
3. https://www.msdmanuals.com/professional/nutritional-disorders/vitamin-deficiency-dependency-and-toxicity/vitamin-b6-toxicity
4. https://www.livestrong.com/article/317889-vitamin-b6-toxicity-symptoms/
5. https://dailymedicalhealth.com/health/how-long-to-rid-body-of-vitamin-b6-toxicity/
6. https://www.easy-immune-health.com/vitamin-b6-toxicity.html