← Return to Prostate Cancer. Male Denial, and the absurdity of it all

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@kujhawk1978

You're not wrong...

Not once have my doctors talked about the side effects of ADT, radiation or chemotherapy.

I have looked those up myself.

I have been "fortunate..." Despite a high risk prostate cancer, GG 4, GS 8, short time to BCR, and rapid PSADT and PSAV, I am here 11+ years after diagnosis

I've had surgery, SRT, triplet and doublet therapy. Total time on treatment, roughly three years...which means eight plus off.

In those 11+ years, I've lived a lot, vacations, birthdays, anniversaries, ski trips with friends, concerts....

If you think statistics, Bell Curve, standard deviations, mean, mode, averages ...I am probably an outlier.

My surgery was nerve soaring and I regained erectile function in 12 months with the help of 5 mg daily Cialis and frequent self stimulation.

SRT did not fry the nerves.

During the 18 months on Lupron and 12 months on Orgovyx I never lost my libido. Genitalia shrinkage, yes, still, I could attain erections.

My recovery of T has been rapid both times, why, I don't know, exercise maybe?

Was there a difference between being on treatment and not in my life, no. The only difference was how I felt living my life. My wife and I did the Ring Road in Iceland, the Bataan Death March Memorial in White Sands, NM with my sister, the Gravel Unbound in the Flint Hills of Kansas, a 55 mile gravel bike ride, with my daughter, skied with friends in Colorado....

I have generally held my medical team to high standards, active listeners, shared decision making, open to other than the standard of care I have also held myself to a high standard, do the homework, know the terns, definitions, take responsibility for my decisions on treatment.

Like I said, I realize I'm an outlier. In part that is because of my approach to managing my cancer and in part, who knows, with my clinical data I should not be on intermittent therapy.

I also realize many on these forums experience the full gauntlet of side effects and less than stellar medical teams.

Kevin

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Replies to "You're not wrong... Not once have my doctors talked about the side effects of ADT, radiation..."

Kevin, It is truly amazing to have been through so much therapy, invasive procedures and life changing drugs and come through it the way you have.
And maybe you are an outlier, but if you recall, @retireddoc is actually on TRT because his oncologist feels that the truly aggressive clones were destroyed by triplet therapy.
Hopefully, the same is true in your case and you can remain on intermittent therapy for longer periods of time.🤞