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Does anyone have EPI (Exocrine Pancreatic Insufficiency)?

Digestive Health | Last Active: 4 days ago | Replies (238)
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@delilady

Pancreas not producing enzymes and on Creon. How serious is this?

Pancreas not producing enzymes. On Creon. Constant stomach pain, lower back pain, nauseous, fatigued, bo control over bowels. They are medium color (I take a lot of Pepto, so mostly are black and oily), float or are like oatmeal. Doc just doubled my Creon and I am scheduled for MRI w/w out contrast in 4 days. When I know a problem with pancreas, the first thing I worry about is pancreatic cancer. Anyone else having these symptoms and have you been diagnosed?

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Replies to "Pancreas not producing enzymes and on Creon. How serious is this? Pancreas not producing enzymes. On..."
Colleen Young, Connect Director | @colleenyoung | Apr 16 12:53pm

Welcome, @delilady. I moved your question to this existing discussion in the Digestive Health support group where other members are talking about pancreatic insufficiency, meaning the pancreas doesn't produce enough enzymes sometimes referred to as Exocrine Pancreatic Insufficiency (EPI).

- Does anyone have EPI (Exocrine Pancreatic Insufficiency)? https://connect.mayoclinic.org/discussion/does-anyone-have-epi-exocrine-pancreatic-insufficiency/

I did this so you can read previous posts and connect with other members like @mutter3 @msmelnik @slkanowitz @myrrh739 @jlmp @coooldad @darb and many others.

Delilady, it is a common reflex to leap to the worse case scenario and fear that cancer may be the cause. However pancreatic insufficiency can be caused by many different things like:
Pancreatitis
Diabetes
Surgery related to the GI tract
Genetic conditions
Celiac disease
Pancreatic cancer
Inflammatory bowel diseases
Zollinger-Ellison syndrome

It sounds like you and your doctor are investigating the cause by ordering an MRI.

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yanina | @yanina | Apr 16 9:39pm

Get on the pancreas surveillance program where you will be screened closely more often and keep an eye on your glucose. (It becomes finicky closer to the pre-cancerous stage.)

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