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DiscussionAnyone have experience with gastrointestinal stromal tumor (GIST)?
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Not at first, because looking in my colon only showed the diverticulitis in 2009. Moving forward in late 2010 Gynecologist felt stomach palpitations and ordered a STAT CT abd/ pelv at the hospital.
CT results showed a very large spindle cell tumor was wrapped on the outside around my Transverse colon. They tumor was processed in Histology and assumed GIST even though the C/KIT was negative. A Radiologist recommended that I go to a Duke Oncologist. I seen a Sarcoma Oncologist, and showed his team the staining results along with a pic of this large tumor after resected and he had tumor slides destained and
restained. He told me after restaining slides that tumor was a rare SFT Sarcoma