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If you have a prostatectomy, do they usually do a decipher test?
Prostate Cancer | Last Active: Jul 4 8:40am | Replies (19)Comment receiving replies
I'm not a medical professional and don't really know what's common in the industry. But I do know that when I had a prostatectomy at Mayo Phoenix 06/2024 no decipher test was performed afterwards. So I suspect that's not a recommended guideline or Mayo would probably be doing it. Of course normally the decipher test is done before to help guide treatment decisions. In my case I have a terrible family history of aggressive prostate and breast cancer so I felt surgery was the best option for me. Of course after surgery since they have the prostate in the lab the pathology report reveals a lot. In my case, the bad news was the pathology report disclosed I had cribriform and IDC present (which hadn't showed up on my pre-surgery biopsy). But the good news was all the margins were clear so I'm hoping it was entirely local to the prostate. In my case with cribriform and IDC present I know if it comes back I'll have to treat it aggressively. I'll be interested to hear what others say on this thread. Maybe I should have requested the decipher test after the surgery just to have more information in case it does come back; I don't know. Best wishes.
Replies to "I'm not a medical professional and don't really know what's common in the industry. But I..."
im in exactly the same boat. pathology showed IDC and cribiform. But i knew that going in. My pre-prostatectomy decipher was 93, which is why i got the surgery. So constant vigilance and aggressive treatment are SOP going forward. i had clear margins, LN and SV, but an EPE.
Im in the process of exploring aggessive treatment options, as I think it is just a matter of time. looking at ultrasensitive PSA testing (uPSA) to more quickly identify PSA changes, maybe getting a PSE (ids cancer fragments in the bloodstream), and looking types of radiation/hormones I want to use if and when a recurrence occurs. i am tyring to find a RO that really is expert in more aggressive cancer and treatment. if you know of anyone, please let me know. Seems like most of the peoiple i talk have limited experiecne in IDC/Cribiform, and appropriate treatment plans.
Based on all the posts here, certainly doesnt seem like PC has a 98% cure rate. Of course, i guess those that have a long history of clear PSA tests arent reading this!
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Thanks @retireditguy
Your situation seems similar to mine although my surgery is not until May.
I know I’m high risk as a result of the biopsy, so if mine comes back after surgery then I guess they will recommend radiation?? I do hope to stay away from ADT drugs - people here say lots of bad side effects. OTOH I would rather deal with side effects than having this spread around.