They still need to be scheduled . He just had one consultation at MD research school hospital. It takes months to get an appointment.
They had a cancelation so we grabbed it. GI consultation with them was last week.

He had colonoscopy at regular GI 2 year ago and they said they saw no inflammation. So they call it ibs. We've been after them for an endoscopy and capsule camera for 9 months. We said I'd pay for the camera capsule if insurance would not pay.
The Dr. Thought he already had an endoscopy. Finally she understood he had not so the flip and camera was ordered.
Then a cancelation happened at research hospital and he'd rather them do it since they will also take samples.
History.
Everything hit at once, bloating, diarrhea, narcolepsy, exhaustion and brain fog.
Ibs had not responded to any food elimination diet. No response to medication. The tenesmus is overwhelming! The worst day was 9 hours on the toilet. Most are 6 hours. Day and night!
He's doing all kinds of supplements.
The brain fog had him like a zombie. I suggested a low histamine and fructose diet in addition to my other so he ate about 6 different foods. He said it took a week to be gone. I saw a difference in 1.5 days.
He had allergists check mast cell actiation ,which came back in speck but if you read up on that it does not mean you don't have it. Histamine clearly made a difference. Not being able to think or respond was worse than the gi stuff.
He can't work nor drive. His life has been going from bed to toilet for over2 years.
He never had digestive issues before nor does it run in his family. Yes, we read people get ibs after a diaherra but what about all the other stuff?
Heck if Mayo or any research wants to him as a patient. Lmk .
We'd love a place that can put all the pieces together.
For now , he's waiting to schedule the flip, then camera and he's been scheduled to check for POTS.
Oh yeah. And his blood pressure is now low.
I hope this info helps someone who may be going thru the same. I pray no one is.