I have to agree, even though system so far failed us and I was angry (surveillance was too passive and hence useless) any time I feel desperation I tell myself that at least we will have many options going forward and that if were living in our country of origin my husband wouldn't even have surveillance beyond DRE and would have zero options for advanced treatments. I decided consciously not to dwell on what was wrong but to concentrate on going forward. I am also not oblivious of the prospect that one day perhaps there will not be any "forward" but that is not going to be my focus.
At the same time I could spend time lamenting about the fact that we are not living in Switzerland or Germany where all costs would be 100% covered and my husband would have 1 to 2 year payed medical leave but what is the point ? *sigh We have to do our best with what we are dealt and with what is available to us. Also, any time I feel down I come here and read about success stories shared by PC veterans and they brighten my outlook : ).
One can ask what is "bright" about PC stories, well it depends what you are looking for in any written post - to me surviving against all odds, enjoying small victories, enjoying company of loved ones, finding humor in ridiculous circumstances of PC, getting heartfelt "hug" from members and getting good advise, all are very bright, very meaningful and hope inducing. < 3

PS: I don't think that patients will ever have truly personalized care and boutique treatment unless they are VIP - very rich people and/or celebrities. It is utopia, as simple as that ...