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SOJGREN'S, SMALL FIBER NEUROPOTHY

Autoimmune Diseases | Last Active: 12 hours ago | Replies (59)

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@suetex

Sounds like you are having the sensory pain that many people havr. For some reason, I was spared that. (But made it hard to diagnose,) I am told by other sufferers that CBD gummies help with the pain. They do not get you high. You would get them at a CBD dispensary. They are for pain. Good luck and best wishes.

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Replies to "Sounds like you are having the sensory pain that many people havr. For some reason, I..."

Thank You so much! I'll try it!

My sensorymotor neuropathy was confirmed by an EMG/nct.
(Nerve conduction test.)
Dr Anne Oaklander is a research neurologist out of Boston. She practices in two other states. One of her lecturers are below on YouTube.


Just an fyi Small fiber neuropathy ( confirmed by biopsies in your leg).
https://www.medicalnewstoday.com/articles/small-fiber-neuropathy#:~:text=Small%20fiber%20neuropathy%20is%20a,and%20certain%20types%20of%20pain.
I was diagnosed with severe axonal sensorimotor peripheral polyneuropathy, SFN, dysautonomia and cardiac autonomic neuropathy. The cardiac autonomic neuropathy (CAN) bothers me the worst. My blood pressure going up and down along with my pulse rate going into bradycardia and tachycardia. When I go into bradycardia it triggers my seizures. So now I started having seizures in my sleep. The neurologist does not tell you neuropathy can cause seizures until they start happening to you and you have no idea what’s going on along with the paralysis. The doctors (cardiologist and electrophsiologist) tried me on medication for the arrhythmias but it did not work. Once the neuropathy moves into your heart you are given eight years to live. I have really bad dizziness and balance problems with the arrhythmias.
I have tested positive for Sjogrens, Lupus and connective tissue disease but never had the problems you are describing. Sjogrens causes dry eyes and dry mouth are the main symptoms.
https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216
Here is info on sensorimotor polyneuropathy
https://medlineplus.gov/ency/article/000750.htm
I do have problems lifting my legs to get into and out of the car. I can no longer drive. I have had four hip replacements and actebulum fracture with an ORIF along with a right hip replacement. My son or husband lifts up my legs and puts them in the car.. I sometimes have problems getting into and out of my bed. I have a sleep number bed that I can raise the head or legs. It hurts my body when I sleep in a bed with coils. I can feel the metal coils. On my bad days I use a wheelchair to get to the doctors office my son or husband pushes me. If I leave the wheelchair at home my son goes to the doctors office and borrows theirs. I have been told this is caused by the motor neuropathy and SFN.