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Cu-64 Dotatate PET results show no malignancy. What’s next?
Neuroendocrine Tumors (NETs) | Last Active: Apr 17, 2025 | Replies (24)Comment receiving replies
Are you currently suffering any symptoms? Because if not, the "waiting game" as you call it is living a quality life. If you just had a PET scan and it is clear, why have surgery? Just curious how you are doing right now and the logic behind additional surgery that may or may not be of benefit. Best of luck to you.
Replies to "Are you currently suffering any symptoms? Because if not, the "waiting game" as you call it..."
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I have zero symptoms. As per my NET specialist, nine more lymph nodes should be removed based on a large study that reflects removal of 12 lymph nodes relates to better long term longevity even if there is no cancer in them. I’ve already had three removed. While he is removing those lymph nodes he will inspect my small bowel as it is quite rare for there to only be one (removed during resection 12/2025). As you may know, sometimes scans do not show NETs. For me, quality of life is knowing that I’ve done everything I can right now to remove tumors out of my body. Watching and waiting makes zero sense to me. Wait to get sick?…To wait for something to show up in a scan every year for the rest of my life or go have a minimally invasive surgery to KNOW there are no more tumors. To me the choice is obvious. Maybe to others it is not. I travel a lot and will not have peace of mind if I am in a third world country and have another blockage from an undetected tumor. For me this will better my mental health by knowing that I did every thing possible as soon as possible. I trust my doctor tremendously. I’ll keep yall posted. Thanks.