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Finally: Diagnosis. Oddly: symptoms have come in stages. Others?

Post-COVID Recovery & COVID-19 | Last Active: Apr 18 8:30am | Replies (45)
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Profile picture for mayfl0wer @mayfl0wer

I’m thankful you posted as well. Your care coordinator sounds phenomenal. It is completely exhausting trying to just make calls, especially when they are dead ends.

Hearing you mention washing your hair and being presentable for zoom meetings reminded me of another early symptom. My hair was breaking off and I was worried I was going to go bald. I joked about having to invest in hats. We have to find the humor still, right!?

Thanks again 🫶🏼

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Replies to "I’m thankful you posted as well. Your care coordinator sounds phenomenal. It is completely exhausting trying..."
jeindc | @jeindc | Apr 14 5:13pm

Now and then, @mayfl0wer , I step outside myself and yes, laugh. I too have lost hair which I couldn't afford to do to keep some self-esteem.

Care-coordinator: If you can find someone do. I'll ask mine if there's a network of people who do this work. For me, because she knew me/my medical history and how I was BEFORE, it helps especially. Still anyone who will deal with the nightmarish systems and hoops we have to go through is worth their weight in gold.

To us! To humor when and where we can find it!

JE

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