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Finally: Diagnosis. Oddly: symptoms have come in stages. Others?

Post-COVID Recovery & COVID-19 | Last Active: Apr 18 8:30am | Replies (45)
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@mayfl0wer

Thank you. I called this morning and attempted to request a patient advocate and was told they don’t have them. I was also told that I can’t find out if a doctor treats long COVID until I’m in an appointment because it’s considered a consultation and requires an appointment. This is what I’ve been dealing with when I try to get help. It’s such a waste of spoons. I’m better off staring at a wall.

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Replies to "Thank you. I called this morning and attempted to request a patient advocate and was told..."
law59 | @law59 | Apr 14 12:23pm

Oh @mayfl0wer. Sounds like your healthcare system similar to my sons which uses the grievance process to escalate assistance needed. This is not a legal or punitive action as so many would think as it is required for the system to show the need for the requested care. In other words, if no advocate is available, and no further level of help offered, request a formal grievance processed immediately over the phone due to your physical and life affecting needs. Hope this gets you that needed forward motion!🌈

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jeindc | @jeindc | Apr 14 6:14pm

I'm reading out of order and am SCREAMING for you. WHAT nonsense! I'm guessing they all are trying to figure out any new rules or guidelines but this is so obnoxious.

I'll ask my Patient Advocate about others. Are you comfortable telling me what part of the country you're in? I'm in DC and she's in the Maryland suburbs of DC.
IS there a way to be able to send DMs to each other or through Mayo if we agree?
Joan

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