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What is the prognosis for mac and bronchiectasis?

MAC & Bronchiectasis | Last Active: Apr 28 9:20am | Replies (26)
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@mariegrace

I was dx 6 years ago and doing ok. Yes it is very upsetting to not know if we will secumb to this disease.
You need to see a pulmonologist who specializes in BE and MAC.
I was givem meds for MAC but had to stop afer 7 weeks.
Hoping that airway clearances, vest, nebulizer and active life will keep it at bay for a long time.
According to the literature, BE life expectancy is 5 years.
Everyone one is different.
Find a good doctor to treat you
Good luck!
Marie

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Replies to "I was dx 6 years ago and doing ok. Yes it is very upsetting to not..."
Sue, Volunteer Mentor | @sueinmn | Apr 14 9:58pm

Ah, Marie,
My ID doc told me when he was treating my MAC that if you control the BE with airway clearance and lifestyle and take the antibiotics when needed, there is not reason not to live a normal lifespan. When I asked about the "5 years" in the literature, he told me he had NEVER lost a MAC patient in 5 years, and had only lost two, who waited many years before seeking treatment, in 10 years.

When he discharged me 5 years ago from antibiotic treatment his words were "Bronchiectasis is a disease you will live with, not die from. "

My Mom had Bronchiectasis for years, took antibiotics frequently, and ultimately died at 85 of an unrelated illness, so I believe him.

So far, I'm still going strong and once I regained my strength after the meds, and got better control of my asthma, I plan to be here for another 25 years (Long life genes - my Dad's little sister is about to turn 98 and still going strong 💪 ❤️; his big sister raised 13 kids and lived to be 92.)

Many times in this group, I have encouraged members to stop worrying about the future and start living in the present- can you work on it?

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