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Hi @kelspal , Good Morning
I also have focal seizures, auras (or simple partial seizures) and complex partial seizures (when your awareness is impacted).
I started to have auras while I was a teenager. They have then evolved to complex partial seizures when one's awareness is impacted.
What does she experience while she has auras? Deja vu episodes, strange smell and taste in the mouth? Those are quite typical during an aura. In case you are interested, I am sending here a link with more details on auras: https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-onset-aware-seizures.
Stress, anxiety, and menstruation are common triggers to seizures.
Has the doctor told you what kind of epilepsy your daughter has? It would be interesting to know. According to my knowledge, not all kinds of epilepsy have auras. I have temporal lobe epilepsy. My seizures start with auras and can evolve to complex partial seizures or not. I am also on Keppra since last December. I also feel very tired and face other side-effects. But I may not be a reference, as I am very sensitive to anti-convulsant medications.
You also mentioned that your daughter has aura feelings. It seems those are prodromes. Prodrome is a feeling that an aura is on its way. Some people feel it, others do not. I have had prodromes in certain circumstances, before having an aura.
I hope this information helps!
Chris (@santosha)
PS: The Epilepsy Foundation (https://www.epilepsy.com/) has great material on understanding epilepsy, in case you are interested.
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Hi, thank you for your response. My daughter was having auras with deja vu feelings. Sometimes the deju vu feeling was not pleasant and/or was associated with a memory. Sometimes a metallic taste in mouth or strange feeling in stomach. In the past, she would sometimes forget where she was or what she was doing for about 10 seconds but was still able to talk and let it pass. Now, she only has small auras (not even positive they are auras) but without taste and she doesn't forget where she is. We don't know if the change is from her change in lifestyle recently. She has been working out, cutting out sugar, getting more sleep, meditating and taking CBD oil. Her Doctor kept increasing her dose because he didn't want her to have any type of aura but she is still having the same feeling. Now, we are thinking she was not having auras and he was increasing her dose when he didn't need to. She is experiencing more side effects and wants to slowly wean back slowly to a lower dose. My daughter has bad anxiety and a lot of stress in her life right now and sometimes has panic attacks that are similar to signs of an aura. I'm going to look up prodrome, thank you for that information.