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← Return to P1NP number on Tymlos
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Thank you!
I had the iodine treatment for my graves disease decades ago and have been on synthroid ever since.
I did see the bone PA this week; she had reluctantly provided the script for the bone markers. However when I queried her about the high CTX, she decided I didn't need the bone marker tests and she would instead order them annually if I insisted. Sigh!
I'm to continue on the Tymlos, reduce my calcium intake, reduce the Vit D from 4k to 3K and in a month, test for: PTH, ionized calcium, magnesium and CMP. I'm also getting the Dexa for the forearm; I have so much osteoarthritis that I can't get a reading for my spine and I've had hip replacement. Then I will redo the REMS in July.
She also said if I tested positive for PTH, I'd have to go on Prolia. I'm going to have to review possible options.
Replies to "Thank you! I had the iodine treatment for my graves disease decades ago and have been..."
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zooie,
I meant to add to my last post that you are probably on track with lowering calcium and or vitamin D.
It makes no sense (to me) that noticing the high CTX excites the insistence that you don't need bone markers.
If your pth is elevated, you have to find out if the parathyroid glands are releasing too much pth, usually by imaging for benign tumors. Going on Prolia in that event is not a remedy. I guess the PA is thinking that Forteo would have to be the cause.
Do you hope the PA will be consulting with the Physician.
Is it possible for you to see a rheumatologist.