I so understand! You have no idea - and I hope you'll read my response to law59's response to you.

I too have felt horribly cold most of the time - and shaking from it. Gastro issues have just begun and they are awful. It will mean yet another doctor I'm sure. I'm so tired of it all. And without my Care Coordinator (see post noted) I absolutely couldn't do this. JUST being on hold to make an appt. and explain is exhausting, isn't it?

I am 'pleased' that my initial post has generated so much discussion. I feel horrible for us all AND am glad "it's not just me".

This is one horrible journey and it will make me retire from work I love too soon. I'm almost 78 and self-employed and had no plans to stop working until I died. Alas no longer can I do so. Even getting dressed well enough to be on Zoom takes too much energy and time. I've thought about wearing hats so I don't have to get haircuts which takes even more energy. I laugh as I write this - it's what a friend and I call our "organ recitals" - and I know how not funny it is.

To us all and to Mayo, thanks for this place to compare and gain comfort from others - get ideas to recommend to our doctors - even if we are told that probl won't work on "my" symptoms.

I long for one night of sleep in a bed instead of a non-recliner chair and one day - just one to not be greedy - of not having the old symptoms flare up and new ones appear.

In this season for many of renewal, may the doctors and scientists doing research continue to do so and help us. Enough is enough.
JE