Newly diagnosed with prostate cancer and still gathering information
I was just diagnosed within the last two weeks. My PSA is 4.1 which I’m thinking isn’t that bad. I was not prepared for the results of the biopsy. Gleason 4+3 intermediate unfavorable. 13 of 15 cores positive. The urologist is favoring surgery. Second opinion also surgery but wants a Pet scan which is in the process of being scheduled. I am in Alabama and expect to be treated here. I am still in the asking questions and doing research stage, at this point I don’t know until after the pet scan if I have any options. The information on the post operative effects ofsurgery goes from mild to wild, I’m concerned. Anyone who can share their experiences would be appreciated.
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At the PCRI conference two weeks ago a Doctor made this comment
“Seeds for metastasis were already there when surgery was done, waiting to grow.”
Now that’s a doctor talking, but I don’t see a study attached. Experience?
I meant to say that my friend had RT, external beam, then adjuvant brachytherapy. Sorry.
Lou
I would just like to add that type of aggressiveness of PC can effect treatment choice.
My husband had one core with intraductal and cribriform present and even though his gleason score is 4+3 he should be treated as high risk case.
Some studies show that patients with intraductal cancer have better survival with initial RP regardless if later RT is needed or not. Also, I read on couple of other forums about cases where RT did not kill cribriform cells in prostate even with high precision radiation. Those cases could be aberrations but it is hard to know since only about 2% of PC have intraductal component. BUT, to be on a safe side, we will probably opt for RP - I say probably since we still did not have a chance to talk to any specialist and are still waiting for PSMA results so we do not even know if cancer left prostate or not.
I am just writing this as info. for new patients who are trying to decide between RP or RT to know that in some cases RP has advantage over radiation.
@robertov, thanks but it’s a little late for me. I already had surgery at age 64 - Gleason 4+3 Unfavorable. Very High volume.
When PSA climbs after surgery it’s watched carefully and when it accelerates it’s time to act. 5 yrs in my case.
Some docs start at levels lower than 0.2, others a but higher in the hope PSMA might show something (usually doesn’t).
At age 73 your preference for radiation is certainly understandable - I might have opted for it myself but I was too “young” and the chance for recurrence was high. I wanted more than one chance to hit back and I got it. After that, who knows?
Phil
This is exactly my concern with the RT option, which I was favoring before. If the cancer is not completely eliminated from the prostate, you are in a difficult situation. Salvage RP is very risky but leaving the prostate is a high risk for spread.
@heavyphil I am 68-1/2 and I am scheduled for the 3rd of my 5 SBRT treatments tomorrow. My first choice was robotic assisted radical prostatectomy (RARP) but after weighing my family's concerns with surgery, plus more research/readings that I did, I finally decided on radiation. I am hoping I made the right choice, and that it works. I am happy for you that you had two chances . Be safe and well.
I'm 67, diagnosed in July. Gleason originally was 4+3. I had the surgery in November, and they determined my Gleason was 4+5 with some spread to the bladder neck. My first PSA is undetectable but I'm still working on incontinence. I'm happy I did the surgery because my cancer was more aggressive than the biopsy showed. Doctor said it "could have been fatal." Recurrence seems likely in my case,
It’s amazing what surgery finds, even though I was totally against it at first.
My surgeon found bladder cancer during my procedure and told me that radiation might have pushed it into a more aggressive grade.
It was treated with BCG infusions and was said to be in remission before my recent 25 salvage sessions.
Hoping that the radiation doesn’t wake that sleeping dog!
Phil
JC76, if you contact PCRI the are located in Culver City California, they also have lots information online that you may find beneficial. Your PSMA pet scan will give you a better sense of treatment direction, My Gleason is 9 and I’m waiting for the Pet scan next week also to decide, one thing I know finding the best surgeon or radiologist it’s half the battle.
Yeah, get you. A friend, who is an Internist and helps people with this very question, had RP. He wanted it out. He is my age. 1+ year later he feels great. Recovered nicely all functionality.
I’m betting a bit on the technology. If I can do something precise enough and kick it down the road, I might be able to do something similar later. Anyway, I appreciate the reminder. My best to you!