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Anyone stopped the Big 3 after 6 months? What was the result?

MAC & Bronchiectasis | Last Active: Apr 16 5:16pm | Replies (8)
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@bayarea58

@lynne54 I would talk to your doctor about your side effects and see if they can work with you to find a drug protocol that is more tolerable for you. NTM specialists are well versed in this, if your doctor is not an NTM specialist you may want to consider seeking one out, though it generally takes some time to get in. There are options, do not assume that if you are not tolerating your current regimen that it is “this or nothing.” Your treating team maybe able to make changes in the drugs, dosage, timing, with food without, etc. It’s a nuanced analysis (despite what a lot of general pulmonologists and infectious disease doctors think). But it is an ongoing process and you need to keep in close contact with your treating doctors to find what will work best for you.

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Replies to "@lynne54 I would talk to your doctor about your side effects and see if they can..."
lynne54 | @lynne54 | Apr 15 2:15pm

Thanks for your input👍
I see an Infectious disease doctor and a pulmonary specialist at MCV in Richmond, Va.
Have another apt. Soon and will write all my questions down.
I am still on the Big three.
1. Clarithromycin ER 500 mg tab. One three times a week
2. Ethambutol 400 mg tabs, 4 tablets three times a week
3. Rifabutin 150 mg capsules. Two caps three times a week.
I will try to make it to the 6 month mark in July👍

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meg2024 | @meg2024 | Apr 16 5:16pm

Thanks for your responses.
I think the Diagnosis and Prognosis that you are initially confronted with, is a shock and hard to deal with but after reading your comments and advice, and your support, you realise that you are not alone in the fight against this Disease so I will now look more positively at the treatment for NTM and also explore other alternatives.

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