Connect
← Return to Connect with others with Severe Scoliosis + Restrictive Lung Disease
Discussion
Connect with others with Severe Scoliosis + Restrictive Lung Disease
Spine Health | Last Active: Apr 19 9:50pm | Replies (31)Comment receiving replies
Hi,
Am hoping that my surgery can go a head in 6/7 months. I need to be weaned off my morphine pain pump first he said because there have been issues with infections with the pain pumps. And then my bones. It’s just that the pain level has become to much. I continue with the good thoughts, guides imagery, breathing and several other ways to help deal with the mind. But.. I sure it will be out several months, but I can hope/pray. Take care, thoughts and prayers to you also
Replies to "Hi, Am hoping that my surgery can go a head in 6/7 months. I need to..."
Connect
Hi 3986,
It sounds like you have learned ways to help you cope with the pain. Waiting this past year has been difficult, but in retrospect it goes more quickly thsn you can imagine.
Several medications, along with anti-inflammatories and tylenol, have helped me manage my pain.
Maybe you might want to discuss them with your doctors if you are not already on them.
I am taking Duloxetine 20 mg, an anti-depressant, although I am not depressed. I take it because it helps with, bone, muscle, and nerve pain. My Pain Doc and I experimented with various doses--30 mg. QD-(once a day), and 20 mg BID-(twice a day). I can stay on til surgery and afterwards.[The first week on this drug is difficult--brain fog and fatigue, but by day 6 it lessens and it continued to get better to where you don't experience any of that. ]
The other drug added to the mix is generic Lyrica- Pregabalin 25 Mg QD- at bedtime. It is for Nerve pain and it also seems to help a little with my back pain. I can continue til surgery and beyond if needed. (I could not tolerate the side effects of Gabapentin). This drug definitely increased my reduction in nerve pain!😊
My favorite drug is a Compounded Drug and must be purchased through a Compound Pharmacy--Low Dose Naltexone, commonly referred to as LDN. I take 4.5 mg at bedtime for Chronic Pain. It is used off-label.
At higher doses it is used to wean patients off of opiods. It is an opioid antagonist--I take 1/10th of that dose. Given that you are on morphine, whether this would be a benefit for you is definitely a question to be answered by your doctors. I love it because it helps and I don't experience any side effects. [At first it was covered by my Medicare Part D prescription plan but after 11 months they are now telling me they don't cover compound drugs. I will be picking up my refill today--I think a month supply will be around $60. ]
I will try to attach one LDN trial.
Good luck with it all. Keep in touch!
Nadine