Connect
Comment receiving replies
gmamrj......I had my first tonic clonic seizure in June 2023 at age 69.....all my tests were negative also. Doc put me on Keppra. In May 2024, I forgot to take my pills one day and had another tonic clonic (non hospitalized). Since then, nothing. So, I am currently weening off the Keppra very slowly, down to 125mg twice a day so far and no changes have occurred. Hope to get off Keppra shortly. Much unknown about seizures and causes. I fell skiing and knocked myself out for a couple of seconds about 4 months before my first seizure and thought that may have brought my seizure on but the doc poo-podded that theory and shook his head. Who knows? Anyway, Keppra affects joint health and I have had joint issues in the past year especially my knees so want to get off of it. Good luck to you and God Bless
ray hippele
Replies to "gmamrj......I had my first tonic clonic seizure in June 2023 at age 69.....all my tests were..."
Connect
@hippele
Hi Ray, Good Morning
Thank you so much for sharing your experiences with us. I have been on Keppra since last December because I went into a status epilepticus, starting at 500 mg twice a day and currently being at 125 mg in the morning and 150 mg in the evening. I also face joint and muscle pains. Interesting you have shared this with us!
Last week, I was having more intense body pains and feeling very weak and tired with headaches all the time. So, my doctor has asked me to do exams for dengue (we are currently facing a new dengue epidemic here in Brazil), influenza and Covid. All came out negative. I was prescribed 500 mg Novalgina (Dipyrone, which I know is not available in the States) and my muscle and joint pains, fatigue and headaches have been relieved a lot. My doctor believes I am having a certain inflammation and recommended I see an immunologist, with whom I have an appointment this week. This inflammatory state has already happened with me while taking another AED (Vimpat) in the past, it affected my immune system.
Besides those joint and muscle pains, are you having other side-effects with Keppra such as fatigue, abdominal pains (especially after eating and/or taking Keppra), headaches and others?
Thank you and wishing you a nice day!
Chris (@santosha)