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Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Liver Cancer | Last Active: 7 hours ago | Replies (82)Comment receiving replies
Recently diagnosed with Stage 4 colangiocarcinoma. Absolutely no symptoms or risk factors. Was treated until last February 2024 for stage 1 breast cancer but this is not metastatic breast cancer. Primary site is liver. My breast oncologist found it bc elevated tumor marker numbers prompted a CT scan. Then Biopsy. Being seen now at Emory Winship Bile Duct Cancer center since I live in Atlanta . Seeking best place for 2nd opinion. Considering Mayo Jacksonville or Moffitt in Tampa but can realistically go anywhere. I would appreciate any feedback about experiences. I feel fine now but chemo is to start soon. Been there. Done that. Not looking forward to it.
Replies to "Recently diagnosed with Stage 4 colangiocarcinoma. Absolutely no symptoms or risk factors. Was treated until last..."
Can’t say enough good things about Mayo in Jacksonville
I just start for treatment of Hepatocellular Carcinoma
Plan is to operate this May 21 ..
Lou
Denver girl... I too have colangiocarcinoma. Luckily mine was discovered early and I had successful surgery. I am not familiar with Mayo Jacksonville, but I was treated at Mayo Rochester, and I cannot recommend them highly enough. My purple team was fantastic.
And Mayo Rochester is a world leader in treating this disease. Do consider them. And best wishes to you.
@lynnliver, I'm sorry to hear that another primary cancer has been found. If you would like to get a second opinion at Mayo Clinic, here's how to get started: http://mayocl.in/1mtmR63
When are you scheduled to start chemo?
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Take a look at Mayo Rochester as well. Good luck
Dan