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Any long-term success stories from those NOT taking hormone therapy?
Breast Cancer | Last Active: Apr 30 11:43pm | Replies (46)Comment receiving replies
Ive stopped too.
I'm having every test done to check more frequently for any reccurrance.
The predict tool is not very helpful & makes a decision difficult to make when there's NO info on recurrances. All we are told is it will be much higher that the predict death rates.
It felt like a step in to the darkness as all I wanted to know was WHAT IS MY % RISK OF RECURRANCE? no one could answer me.
I've made my decision on my quality of life which is definately better OFF Als/ Amotase inhibitors.
I can only eat & sleep well & keep active & avoid alcohol (special occasions may be ) to support my decision & pray 🙏
I did get the support from 2 oncologists as I asked for a 2nd opinion before deciding & both agreed the ALs were limiting my life quality & I would improve both mentally & physically off them.
So I stopped & I am happier, healthier & more active so it's been a good decision.
Good luck making yours.
Replies to "Ive stopped too. I'm having every test done to check more frequently for any reccurrance. The..."
Hi Brightside,
Are you able to share more of your BC Stage/Age of occurrence and if you had radiation/lumpectomy? I've had a successful lumpectomy, clear margins, negative lymph nodes, 5 day partial breast targeted radiation therapy, I'm in perimenopause, and Tamoxifin as all the AI options seem like the side effects are really bad and may cause other major health issues. I don't think the USA offers a lower dose of Tamoxifen....
Thank you for all the above shares.
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My treatment plan is 20 radiation session with the last 4 boosts. He said that a high percentage of woman can’t tolerate the AI(which I will get one month after radiation) and end up stopping it. That’s why he said the radiation would up my chances for no reoccurrence.