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Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis

Autoimmune Diseases | Last Active: Apr 30 2:30pm | Replies (30)
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@amarnaseer

I have used hydrocloroquine initially as diseases modifying agent for RA, then methotrexate as immunosuppressant at age 59, when I was in remission for RA. By 60 years I experienced myositis / muscle atrophy probably linked to autoimmune condition. Muscle biopsy and EMG nerve testing revealed chronic inflammatory conditions.
Later I was tested for genetics that is whole genome sequencing, which revealed presence of genome for Bethlehem Myopathy, but the doctors are not sure if Bethlehem Myopathy is active due to non-conforming symptoms.
For chronic inflammatory myositis the Rhuematologist and Neurologist
are considering combination of Prednisolone and Rituximab to start with.
Planning to start this treatment in two weeks and see if remission happens. Will share progress as the treatment starts.
Wishing you well.

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Replies to "I have used hydrocloroquine initially as diseases modifying agent for RA, then methotrexate as immunosuppressant at..."
pm56 | @pm56 | Apr 13 8:32am

I have an EMG coming up - was it painful?

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catartist | @catartist | Apr 13 8:51am

I did discover my late onset muscular dystrophy ( I am a young 78!) after a glute biopsy - single mutated dominate gene-very rare and of course no cure. Probably been masked by RA pain and atrophy for years - but muscles / tendons started popping and weakness increased - now walking is a big challenge. Just gave up driving which as an active artist is a life changer - tho my dear husband promises lots of support! . Most interesting. Still doing more DNA through UConn -Researching for more info for my 3 grown kids and 8 grands!
I too have iGgIV monthly and it’s made me feel much better - less likely for OTHER things getting me! Best to us - survivors!!!

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Amy19 | @amy19 | Apr 30 2:18pm

Have you tried Lyrica to help manage your symptoms? This works for me. I may have me mentioned this before! I’m still getting used to following these threads. I hope you feel better soon!

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