Hi, @curiousgirl2468. I’m Amy.🙋‍♀️

You are not alone. 💛 Everyone here is going through this process, and it is exhausting!

I am like you, always getting a borderline dx and little help. I’m 61 years old now and finally found a Rheumatologist to dx Mixed Connective Tissue Disease (MCTD). And a neurologist to dx Chronic Inflammatory Demyelinating Polyneuropathy. We are still discussing meds.

I already take Methylprednisolone for NSIP and ILD, Pregablin for Fibromyalgia, Celebrex for Osteoarthritis, and Tramadol for pain. Xeljanz for Inflammatory Arthritis was great until I got infections and my brain MRI uncovered a previous stroke.

In the past I took Pristiq for MDD and Vyvanse for ADHD. My daughter (38) has found that these work for her, too. She takes these and Pregablin, and she was able to advance to six-figure management job. Unfortunately, I am on disability because I didn’t find help soon enough.

I eventually had to hire a concierge PCP ($4500/yr). I take these supplements (my idea): choline, salmon oil, magnesium, zinc, hylauronic acid, vitamins D and B-complex, Bio K, Kefir, joint juice, multi collagen, coconut water for potassium, Electrolit beverage for hydration, zinc, digestive enzymes, gluten-ease, I grind my own wheatgrass, use CBD lotion, Ossoccilium homeopathic, and aromatherapy.

I walk every day. I use a stationary bike, FitCube, one-pound weights for arms, hands, and wrists. I meditate, paint, garden and write.

All of these help, but it’s a massive self-care agenda. You have to prioritize your well-being. If you need financial help go to the Social Services County office in your community.

I wish you all the best and look forward to your updates. Feel free to reach out. 🙋‍♀️