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Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Autoimmune Diseases | Last Active: Apr 27 4:22pm | Replies (64)
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@penn

I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!!
I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN, OTHER THINGS, NO ONE ON MY MOTHERS SIDE HAS IT, MY FATHER'S ???

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Replies to "I HOPE THERE IS SOME WAY YOU CAN BE HELPED!!! I HAVE, SOJGRENS, SM.FIBER NEUROPOTHY, PAIN,..."
suetex | @suetex | Apr 13 5:11pm

As far as I can tell, autoimmune conditions are not directly inherited. They can just "pop up", so to speak. Or so it seems to me. The only treatment right now for Sjogren's is IvIg and it is slow and probably for the rest of your life-if your veins hold up. And expensive, if you pay out of pocket. There are drugs in the works but of course we need them now. With that in mind, I would like to hear from anyone who has had to stop IvIg. What happened?

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penn | @penn | Apr 13 9:02pm

Don't take Nortriptyline! Read about it!
No one on my mother 's side Father's? don't know about my Fathers?
I'm calling that dr. Tomorrow!

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penn | @penn | Apr 14 6:35am

I can't take it! Pain so bad! My life has changed 100 %

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artemis1886 | @artemis1886 | Apr 14 8:05am

I have no idea about my father’s side. My mother refuses to be tested for neuropathy. She has tremors like I do from the motor neuropathy. I have been taking the IVIG.

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