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@gin64

I know this is an old thread so you might not see it but on the off chance you will, I wanted you to know I'm grateful you posted. It gives me hope. I have a different kind of fistula, enterocutaneous I think is what it's called. The fistula opened my surgery incision. Losing some blood with it but I also have stage 4 cancer so no surgery while I'm doing chemo. 6 months of chemo later and a good PET scan result and I'm scheduled for surgery in a few weeks. I'm scared to death and excited at the same time. I'm soooo ready to be done with the wound pouches. They're like ostomy pouches but bigger. And since it's not an ostomy with a stoma, the intestine is down in the 5-inch wide hole which is in a crease so there's lots of skin exposed. I cover it with moldable barrier rings and strips but the acids eat away at it. So it should be changed in 2 days to keep the skin from burning too much but I have to try for 3 because I can't afford the pouches and I'm battling the insurance company to cover them. Didn't mean to go into all this. Just wanted to say thank you for sharing!

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Replies to "I know this is an old thread so you might not see it but on the..."

Bless you and I wish you all the best of outcomes! These situations are so devastating and I was very lucky that mine shocked me into a sort of numbness in which I felt apart from myself. With each new blow I still had faith in the medical profession that things would somehow turn out all right. I was also very lucky that my husband was there taking care of me and that (&*^$&^*)_ bag until I decided to take on the responsibility myself. Again, the very best of luck!