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Reclast infusion today

Osteoporosis & Bone Health | Last Active: 6 days ago | Replies (42)

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@dannyandebbie

I looked up the infusion that my Endocrinologist has recommended! This is what I found!
What are the side effects of denosumab injections?

severe abdominal pain. painful or swollen gums, loosening of the teeth, numbness or heavy feeling in the jaw, poor healing of the jaw. unusual bleeding or bruising. nausea, vomiting, headache, and decreased alertness after stopping denosumab and for up to 1 year afterwards. And my primary recommended that I do take it, “ but, then again, it’s up to you, it’s your body” , were her words! P.s. I found out that she is a Nurse Practitioner today also, not that this makes a major difference!

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Replies to "I looked up the infusion that my Endocrinologist has recommended! This is what I found! What..."

Wow! I hope you don’t have any of those side effects. Thinking of you.

Well, that looks awful. I would feel better myself if the person was an experienced endocrinologist. Can you get a second opinion?

I know it isn't about me, but to let you know how I approached my plan. I got an endocrinologist which took me two years to get in, not ideal, but she was local and has great reviews online. I look at the Dr's background and reviews from people who use them. Meanwhile, I contacted Dr Mccormack, who had osteporosis himself. He suggested, the daily injection, is it Forteo?, to build bone, then Reclast. Meanwhile, he told me what supplements to take and I had a GI map done. My insurance paid for it all because I wrote them and asked them to. I was shocked when I got a check!

I got the appointment with the endocrinologist and she didn't think that I should have Forteo, because at that time it had a black box warning for bone cancer if you have had radiation. I had radiation due to breast cancer. I have had cancer 3 times and so I feel prone to it. My oncologist told me to find another drug. Dr McCormack didn't know about the black box warning. The endocrinologist thought Evenity would be best. That comes with a negative cardiovascular warning. My primary care Dr helped me with blood work and a stress test. Everything checked out. My blood work had some strange clotting factor result so I went to a hematologist. He told me it was nothing and it should not have been done because that one test is supposed to be in a series and that one meant nothing. They told me that regarding all the side effects of a medication, if anyone in the study gets any side effect they have to note it as a possible side effect, even though it may not actually be from that drug.

So, long story short, doctors don't know everything. Go to at least another with a good reputation for another opinion. My endocrinologist looks at the studies I have looked at and lets me know her opinion of them.

Best wishes. Osteoporosis sucks.
Karen