1. < Osteoporosis & Bone Health

Reclast infusion today

Posted by kallettla @kallettla, Apr 4 9:19am

I just wanted to let people know about my recent Reclast infusion. I hydrated for a couple of days before the infusion with water and coconut water for potassium. I take ionic magnesium daily in water and drink it all day. Before my infusion I took ibuprofen and 4 Zyrtec. 2 in the AM, which I normally take and 2 more an hour before the 2 pm infusion. My specialist told me I can take that for my severe allergic reaction to fragrance. Even though the hospital is fragrance free, I always run into fragrance there. This time is was the warm blanket and pillow.

About 5 pm, I started feeling wishy washy like I had to think hard about doing things. For example, using the microwave I turned on the vent while cooking. When I no longer needed the fan, I couldn't find the correct button to shut the vent fan off. It was un-nerving. Eventually, I figured it out. It reminded me of when I had bad Lyme disease. I was extremely hungry, ate my dinner and then ate a whole sleeve of crackers, which I have never done before. I got very tired and went to bed early. I had strange dreams. For example, I dreamt I grew a second spine. When I woke up my body was achy and I felt nauseous. Today, I am able to putter around, but it is a low energy day. If this is as bad as it gets, and is temporary, I would get the infusion again, if it helps retain the bone that I hopefully built with the 12 months of Evenity. If anything changes, or gets worse, I will let you know.

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missey | @missey | Apr 12 10:11am
In reply to @dannyandebbie "As I sit here thinking about a lot of this. I am not suggesting anything to..." + (show)
@dannyandebbie

As I sit here thinking about a lot of this. I am not suggesting anything to anyone. However, I think about this, this way! Had I never seen an endocrinologist I would not have any knowledge of my bone density and therefore would of never had the Reclast infusion and having to deal with the pain and constant discomfort that I have acquired from receiving it. Granted, they say I am more susceptible to a bone fracture; such as a hip! Well, before the endocrinologist had this knowledge ability a lot of us never acquired a fractured hip and I know, some did. I guess what I am trying to say is that my life was more normal instead of having to deal with constant pain in my shoulders, left foot and constantly feeling exhausted; which could come from the infusion as well as the stress thinking about what a mistake I made having the first infusion. My primary is suggestion that I receive the next infusion because they are not going to use the Reclast. The medication that they are wanting to use has very little side effects, Just the possibility of constant back pain! Really!

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What is the next medication? The doctor has ordered for you instead of reclast. Thank you.

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1 reply
clj9821 | @clj9821 | Apr 12 10:21am

Can I ask what the next medication is? I’m on the same path you are on!

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2 replies
jjpoodlespress | @jjpoodlespress | Apr 12 12:54pm

Keep us posted please to any side effects from Reclast.

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jjpoodlespress | @jjpoodlespress | Apr 12 12:55pm
In reply to @beanieone "My Fellow Reclastonites, Don't forget to have your doctor prescribe a "slow infusion" for Reclast and..." + (show)
@beanieone

My Fellow Reclastonites,

Don't forget to have your doctor prescribe a "slow infusion" for Reclast and that the tech/nurse who administers it adheres to that request. Prior to my last infusion, I remembered my doc telling me that it should take 45 minutes to an hour for the infusion . . . when I asked my nurse, she said, "Oh, only about 15 minutes." Had I not asked and verified . . . just sayin'!

It is my understanding that the longer infusion time causes fewer side effects.

Wishing everyone sunny skies and strong bones! Cheers!

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Any side effects from Reclast?

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3 replies
dannyandebbie | @dannyandebbie | Apr 12 4:52pm
In reply to @missey "Have you researched the side effects and looked at the forum for this medication? It sounds..." + (show)
@missey

Have you researched the side effects and looked at the forum for this medication? It sounds very typical of statin intolerance, and of these infusions. Best wishes and hope you feel better

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I looked up the infusion that my Endocrinologist has recommended! This is what I found!
What are the side effects of denosumab injections?

severe abdominal pain. painful or swollen gums, loosening of the teeth, numbness or heavy feeling in the jaw, poor healing of the jaw. unusual bleeding or bruising. nausea, vomiting, headache, and decreased alertness after stopping denosumab and for up to 1 year afterwards. And my primary recommended that I do take it, “ but, then again, it’s up to you, it’s your body” , were her words! P.s. I found out that she is a Nurse Practitioner today also, not that this makes a major difference!

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2 replies
dannyandebbie | @dannyandebbie | Apr 12 4:54pm
In reply to @clj9821 "Can I ask what the next medication is? I’m on the same path you are on!" + (show)
@clj9821

Can I ask what the next medication is? I’m on the same path you are on!

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It is Denosumab! I looked it up and found the enclosed!
What are the side effects of denosumab injections?
severe abdominal pain. painful or swollen gums, loosening of the teeth, numbness or heavy feeling in the jaw, poor healing of the jaw. unusual bleeding or bruising. nausea, vomiting, headache, and decreased alertness after stopping denosumab and for up to 1 year afterwards.

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1 reply
missey | @missey | Apr 12 5:26pm
In reply to @dannyandebbie "I looked up the infusion that my Endocrinologist has recommended! This is what I found! What..." + (show)
@dannyandebbie

I looked up the infusion that my Endocrinologist has recommended! This is what I found!
What are the side effects of denosumab injections?

severe abdominal pain. painful or swollen gums, loosening of the teeth, numbness or heavy feeling in the jaw, poor healing of the jaw. unusual bleeding or bruising. nausea, vomiting, headache, and decreased alertness after stopping denosumab and for up to 1 year afterwards. And my primary recommended that I do take it, “ but, then again, it’s up to you, it’s your body” , were her words! P.s. I found out that she is a Nurse Practitioner today also, not that this makes a major difference!

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Wow! I hope you don’t have any of those side effects. Thinking of you.

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1 reply
beanieone | @beanieone | Apr 12 6:12pm
In reply to @jjpoodlespress "Any side effects from Reclast?" + (show)
@jjpoodlespress

Any side effects from Reclast?

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Hi @jjpoodlespress,

I’ve had at least seven Reclast infusions, beginning in 2011; the last in 2024. Knock on wood, I’ve not had any adverse reactions to the infusions.

I do make sure to hydrate before/during/after the infusion and eat a little snack (pretzels work well) during the process. The nurses at the infusion center are more than happy to provide water and snacks :).

Cheers!

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dannyandebbie | @dannyandebbie | Apr 12 7:29pm
In reply to @missey "Wow! I hope you don’t have any of those side effects. Thinking of you." + (show)
@missey

Wow! I hope you don’t have any of those side effects. Thinking of you.

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No! I will not have because I have decided against having it done! I’ve started going to physical therapy and started taking 2000 iu of vitamin D. That will be my treatment from here on out. I retired a yea and half ago, went for the Reclast infusion and have felt awful since! 10 months out; last night I moved in my sleep and the pain was so intense it actually woke me right up out of a sound sleep. I feel that this is why I’m always feeling exhausted. I have thought about a cat nap but I need to keep it in control, not it controlling me!

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2 replies
clj9821 | @clj9821 | Apr 12 8:54pm
In reply to @dannyandebbie "It is Denosumab! I looked it up and found the enclosed! What are the side effects..." + (show)
@dannyandebbie

It is Denosumab! I looked it up and found the enclosed!
What are the side effects of denosumab injections?
severe abdominal pain. painful or swollen gums, loosening of the teeth, numbness or heavy feeling in the jaw, poor healing of the jaw. unusual bleeding or bruising. nausea, vomiting, headache, and decreased alertness after stopping denosumab and for up to 1 year afterwards.

Jump to this post

Yikes! There are many side effects and things to consider. Best of luck to you!

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