← Return to Anyone else been diagnosed with a borderline ovarian tumor?

Discussion

Anyone else been diagnosed with a borderline ovarian tumor?

Gynecologic Cancers | Last Active: May 9 11:00am | Replies (72)
Comment receiving replies
@skyegirl

I know it's been awhile since your post but I am curious to know if you got a second opinion and what happened? I also have a diagnosis of borderline tumors on both ovaries after a bilateral Salpingo oopherectomy. Last month. My case was reviewed at our Cancer center in a major city in Canada and I am waiting to discuss the report with my gynecologist but was told by the nurse at the centre that they would not be doing any follow-up other than a CT scan and regularly checks with my gynecologist. It seems a little premature to make that prognosis before I've had the CT scan even.I too I'm not 100% happy with this and wonder if I should look for a second opinion somewhere. I would have at least appreciated a consult with an oncology gynecologist so they could explain more about these tumours. Hope all has gone well with you. Thanks in advance.

Jump to this post

Replies to "I know it's been awhile since your post but I am curious to know if you..."
kimberly1006 | @kimberly1006 | May 9 11:00am

Hello Skyegirl,

Sorry for the delay in my reply.

Yes, I did get a second opinion pathology report from MD Anderson. They diagnosed a Seromucinous Borderline Tumor which they did not stage and said that it was not possible to stage based upon the slides alone.

My current follow up protocol is lab tests (C125, CEA and CA19-9) and CT scans with contrast every 6 months for the first five years and annual follow up thereafter. At I write this, two of my lab tests have gone up slightly and of course, I am concerned about a recurrence.

On my own, I had to seek out a gynecologist/oncologist for my follow up. My original gynecologist who was consulting with a gyn/oncologist said that I didn't need follow up after the surgery and first lab tests post surgery. I was very upset by what seemed like a cavalier approach and that is when I researched dozens of gyn/oncologists on my insurance plan and I chose one who actually had done a residency at MD Anderson and she has other credentials that I liked as well.

I hope this helps and I hope that you get the follow up care that you need.

Hugs,
Kimberly

VIEW AND REPLY